Re: PROCESSING is what's so bad......
Posted by RavynG on February 9, 2005 at 17:26:28:
In reply to: Re: PROCESSING is what's so bad...... posted by Ginny on February 9, 2005 at 16:38:55:
Dear Ginny,Porphyria is a genetic metabolic disorder. Heme is the red in red
blood(like chlorophyll is the green in plants)and porphyrias(there
are 6-8 kinds depending on who you ask)mean that the heme is not
process properly and therefore the blood is always lacking--which
translates to low blood iron in some porphyrias and excessive
cellular oxidation. The symptoms for me are so similar to lead
poisoning that for many years that is what they thot I had. Until I
found out who my biological parents were and found out they had been
tested and diagnosed. (if one parent has it, the chances are 50%, but
for 2 parents it is guarateed--and both mine have Porphyria, but two
different types.)Very rare, altho more common than previously
suspected, now that we have DNA testing.
A hundred years ago Porphyria was called the Vampire Disease. Some
forms cause excessive hair growth and skin scarring that leaves one
almost transformed--so there is some connection with werewolves too.
It does not help the reputation that I have long long black hair and
very pale skin--LOL! My hematologists tease me all the time about not
choosing me to be the poster-child for Porph or I will set the cause
back 100 yrs! As a youngster I was quite 'gothic' in my style. Take
all that and mix it up with French-Greek-Gypsy who
practices 'CatholiCraft' and well...guess I get what I deserve
sometimes!
I make sure I go out in the sunlight and 'look' at the sunlight(to
stimulate the pituitary and pineas)but I have to be covered and
protected.
Good thing I am night person huh? LOL
Ravyn, Lady Heresy
Follow Ups
- Re: PROCESSING is what's so bad......
Ginny 19:19:27 2/9/2005
(0)
